Privacy Policy

Last updated: 8 September 2026

Your privacy matters to us ๐Ÿงก

Myelopathy.org respects your privacy and is committed to protecting the personal information you provide when using our online store.

This Privacy Policy explains what information we collect, why we use it, who we may share it with and the rights you have over your information.

We only ask for information that is reasonably necessary to operate our store, process orders and provide customer support.

๐Ÿ”’ YOUR PRIVACY We handle your information responsibly
๐Ÿ“ฆ ORDER FULFILMENT Information is used to process your order
๐Ÿงก NO DATA SALES We do not sell your personal information

1. Who We Are

This online store is operated in support of Myelopathy.org, Registered Charity No. 1178673.

For privacy enquiries relating to the Myelopathy.org Store, please contact:

[email protected]

2. Information We May Collect

When you browse our store, place an order or contact us, we may collect information including:

  • Your name
  • Email address
  • Billing and delivery address
  • Telephone number where required for delivery
  • Products ordered and order history
  • Delivery and fulfilment information
  • Information you provide when contacting us
  • Technical information about how our store is accessed and used
  • Cookie and device information where applicable

If you order a personalised product, we may also process the text, image or other information you provide for that personalisation.

3. Payment Information

Payments are processed through the secure payment services made available through our store.

We do not need to see or store your full payment card details in order to fulfil your order.

Payment providers may process information necessary to authorise, complete, refund or protect transactions in accordance with their own privacy policies.

4. Why We Use Your Information

We may use personal information to:

  • Process and confirm your order
  • Arrange production and fulfilment
  • Deliver your order
  • Provide order updates
  • Respond to questions or customer-service requests
  • Process refunds, replacements or complaints
  • Prevent fraud and keep our store secure
  • Maintain appropriate financial and accounting records
  • Comply with legal and regulatory obligations
  • Understand and improve the operation of our store

5. Our Lawful Bases

UK data-protection law requires us to have a lawful reason for using personal information.

Depending on the circumstances, we may rely on:

  • Contract โ€“ where information is needed to process, fulfil and deliver an order or provide a service you have requested.
  • Legal obligation โ€“ where we must retain or use information to comply with applicable law, tax, accounting or regulatory requirements.
  • Legitimate interests โ€“ where reasonably necessary to operate and protect our store, prevent fraud, respond to enquiries and improve our services, provided your rights do not override those interests.
  • Consent โ€“ where we specifically ask for your permission, for example for certain optional marketing or non-essential cookies where required.

6. Who We Share Information With

We only share personal information where it is reasonably necessary to operate the store or fulfil your order.

This may include:

  • Our ecommerce and website service providers
  • Secure payment providers
  • Print and fulfilment partners
  • Delivery companies and postal services
  • Technology and hosting providers
  • Professional advisers where necessary
  • Government, regulatory or law-enforcement bodies where legally required
We do not sell your personal information to advertisers or other organisations.

7. Worldwide Fulfilment & International Data

The Myelopathy.org Store ships worldwide and may use fulfilment, technology and delivery providers operating in different countries.

This means that information necessary to fulfil your order may sometimes be processed outside the United Kingdom.

Where data-protection law requires safeguards for an international transfer, we expect the relevant safeguards or recognised transfer mechanisms to be used.

Only information reasonably necessary to provide the relevant service should be shared.

8. How Long We Keep Information

We do not keep personal information for longer than reasonably necessary.

How long information is retained depends on why it was collected and any legal, accounting, tax, fraud-prevention or regulatory requirements that apply.

Order and transaction records may need to be retained for the period required by applicable financial and legal obligations.

Information that is no longer required will be deleted, anonymised or securely disposed of where appropriate.

9. Cookies & Similar Technologies

Our store may use cookies and similar technologies to make the website work properly, maintain security and remember necessary settings.

We may also use analytics or other optional technologies to understand how the store is used.

Where consent is legally required for non-essential cookies, these should only be used in accordance with the choices you make through the store's cookie controls.

You can also manage cookies through your browser settings, although blocking essential cookies may affect how some parts of the store work.

10. Marketing

We will only send direct marketing communications where we have an appropriate lawful basis to do so.

Where marketing relies on your consent, you can withdraw that consent at any time.

You can also use any unsubscribe option included in an applicable marketing email.

Opting out of marketing will not prevent us from sending information that is necessary to process or manage an order you have placed.

11. Keeping Your Information Secure

We take reasonable steps to protect personal information from unauthorised access, loss, misuse or disclosure.

We also rely on reputable ecommerce, payment, fulfilment and delivery providers to use appropriate security measures when processing information on our behalf.

No method of transmitting or storing information online can be guaranteed to be completely risk-free, but we aim to use proportionate safeguards appropriate to the information being processed.

12. Your Data-Protection Rights

Depending on the circumstances and applicable law, you may have rights relating to your personal information, including the right to:

  • Ask what personal information we hold about you
  • Request a copy of your personal information
  • Ask us to correct inaccurate information
  • Ask us to delete information in certain circumstances
  • Ask us to restrict certain processing
  • Object to certain uses of your information
  • Request data portability where applicable
  • Withdraw consent where processing is based on consent

These rights are not absolute and may depend on the circumstances and the lawful basis on which information is being processed.

To make a privacy request, contact [email protected].

13. Complaints

If you have concerns about how we have handled your personal information, please contact us first so we have an opportunity to help.

You also have the right to raise a data-protection complaint with the UK's independent supervisory authority, the Information Commissioner's Office (ICO).

Visit: ico.org.uk/make-a-complaint

14. Children

Our store is intended for people who are able to make a valid purchase or who are purchasing with the involvement of a parent, guardian or other responsible adult where appropriate.

We do not intentionally use the store to collect personal information from children for marketing purposes.

15. Changes to This Privacy Policy

We may update this Privacy Policy from time to time to reflect changes to our store, service providers, technology or legal requirements.

The date at the top of this page shows when the policy was most recently updated.

Questions about your privacy? ๐Ÿงก

If you have a question about how information from the Myelopathy.org Store is used, or would like to exercise a data-protection right, please contact us.

Email [email protected]
Thank you for supporting Myelopathy.org.
We value the trust you place in us when shopping with our charity. ๐Ÿงก